This is Monti's special quilt.
Wednesday, February 18, 2015
This is Ali - she lives in an area with a lot of snow in the winter. It's hard for her Mom to get her coat on and off. My Mom had the idea of make a quilt-coat for her.
Her parents made me a pattern cut to her size and customized just perfect for her while she's in her chair. Its complete with holes for her arms since she doesn't like to have them covered.
And here's the result:
My Mom delivered the finished quilt to Ali and her family today. She told me that Ali was so excited, and I love these pictures, with her eyes sparkling. Looking at this picture makes me so happy. We love you Ali!
Its also been so fun to make this quilt, because Lily has been really excited about it. I was ironing the dresden petals, and after I ironed them, I'd hand them to her so she could with her pretend iron. She said, "These are hot! I'll iron them with my cold iron - because Ali doesn't like them hot."
I feel really grateful to get to be making these quilts. Thanks again to everyone, this was a gift from many people. - Lauren
Monday, February 9, 2015
(This post written by Trueman's Mom)
Our son Trueman began struggling at 18 months old. He began by refusing to nap and waking up for the day at 5 am. He had to be constantly moving and could not self entertain. As time moved on we noticed he refused to eat everything but a handful of the same foods. He had chronic ear aches and would get croup in the middle of the summer.
His medical difficulties began to affect every aspect of his day-to-day life. Over time, the outward manifestations of the struggle within his body came in the form of severe hyperactivity, emotional outbursts, destructive behavior and multiple awakenings during each night. He was also harmful with himself and others. As time passed he complained of “yuckies” in the back of his throat that he would choke on and then swallow back down.
He began a slew of medical testing at the age of 3 1/2. He had more scopes, surgeries, hospitalizations, Doctors visits, therapy visits and tests than we can even begin to count. Trueman was diagnosed with Eosinophilic Esophagitis and sleep apnea. At one point in his journey he refused to eat altogether so he had a feeding tube surgically inserted at the age of 4. His only source of nutrition became a medical formula. He began drinking the formula by mouth at the age of 5. Trueman was able to have his feeding tube removed after a few months of proving that he could continue to grow without needing any tube feedings. He had three surgeries to correct his severe sleep apnea. He is now almost 6 years old and his body still cannot tolerate any type of nutrition except the medical formula. For the first time in 4 years he is sleeping through the night and waking up rested.
Trueman still visits the Doctors often for testing and attends therapy on a weekly basis to help him cope with the affects of a medical life. He can’t eat anything with his peers or family during snack times, birthday parties, play dates, holidays or everyday life situations. One of his Doctors thinks he has an auto immune disorder. Overall there are more questions than answers in regards to his health, but at the end of the day, Trueman is healthier and happier than he has been in years and his motto for life has become "I can do hard things!" When he sees others with physical challenges or other difficulties he'll say "Hey Mom, they can do hard things too!"
Thanks so all of you who made this quilt possible! - Lauren
Saturday, January 17, 2015
I'm wrapping up my first quilt and will soon be sending it off to its new little owner. I'm so excited about the next one I'm going to be working on. It is for a sweet girl in a wheelchair and its hard to get a jacket on her. Its going to be a fun challenge to design the quilt to fit the dimensions of her chair so she'll have something warm that can easily go on and off.
Monday, December 15, 2014
Thank you to everyone who has been part of our endeavor over here. I'm so excited about all of this. I'm working on the first quilt now - for a little guy who has been going to frequent doctor appointments and multiple surgeries for over a year (more on his story when his quilt is finished). For now, I was determined to figure out how to quilt a soccer ball and after some trial and error - success! I can't wait for this to come together.